This first show in our series on the untold stories of dementia is an interview with Dr. Pauline Boss about the experience of ambiguous loss. She explains how dementia often creates a situation in which a person’s body is present, but the mind is absent. For caregivers, this can generate feelings of ambivalence toward the person with dementia, including wishing for this person’s death as a way to resolve the ambiguity. Dr. Boss says that these normal wishes can leave the caregiver feeling guilty and confused, and she stresses that caregivers need community support, starting with a recognition of the ambiguous loss that has taken place.
An interview with broadcaster, author and former Jesuit Priest, Neil McKenty about how his expectations about aging have matched up with his own experience of growing old. The interview was recorded during the summer of 2010, in Neil’s 85th year of life. He talks about his approach to his own death, his regrets, how sex evolves with age, the evolution of his beliefs about the afterlife, and what he fears most about aging. Neil was an inspiration for the creation of Safe Space, and a consultant to the show since its inception in 2008. We were honored to have his guidance all these years, and his ongoing encouragement to “keep it real.” The show is aired as a tribute to Neil who died on May 12, 2012.
Women’s Postmenopausal Sexuality, an interview with storyteller Judith Black. [Read more…]
Anticipatory Dementia: an interview with designer and sociologist John Zeisel about his work designing residences that optimize brain functioning and relational presence for people with Alzheimers. [Read more…]