A conversation with Julia Jarvis about how her relationship with her difficult father has evolved both before and after he got dementia. She describes how during her childhood, Julia’s father was moody, punitive, and sexually inappropriate. For this reason she limited her contact with him, but with the birth of her own children she allowed him a second chance to be a part of her life. Now that he has dementia, some of his previous tendencies have returned, but in a different form. Julia talks about her struggles to make peace with him, and about the challenges now faced by the caregivers in her father’s life.
This first show in our series on the untold stories of dementia is an interview with Dr. Pauline Boss about the experience of ambiguous loss. She explains how dementia often creates a situation in which a person’s body is present, but the mind is absent. For caregivers, this can generate feelings of ambivalence toward the person with dementia, including wishing for this person’s death as a way to resolve the ambiguity. Dr. Boss says that these normal wishes can leave the caregiver feeling guilty and confused, and she stresses that caregivers need community support, starting with a recognition of the ambiguous loss that has taken place.
A conversation with Julie Colpitts, Executive Director of the Maine Coalition to End Domestic Violence, about how survivors of abuse are often drawn to social service and first responder jobs, [Read more…]
Anticipatory Dementia: an interview with designer and sociologist John Zeisel about his work designing residences that optimize brain functioning and relational presence for people with Alzheimers. [Read more…]