This episode features Melynda, whose husband has frontotemporal dementia (FTD). Unlike Alzheimer’s, FTD is not first characterized by problems with memory, but by poor judgment and inappropriate behavior. Melynda’s husband, a doctor, began to make errors in judgment by over-prescribing pain medications to his patients, and was incarcerated for these mistakes. After his incarceration, the …read more »
Therapist Nancy Sowell remembers the family secrets that came out as she was caring for her grandmother with dementia, and how the curious distance and even hostility she had always felt from this side of the family began to make sense as her grandmother opened up for the first time. She discusses how dementia can …read more »
A conversation with Liz Havu about the experience of caring for her mother, who has both Alzheimer’s disease and vascular dementia. She talks about her promise never to put her mother in a nursing home, and how this decision has brought her family together in more ways than one.
Frances Randolph’s husband had early-onset Alzheimer’s. In this conversation, she remembers the outgoing man she married and how dementia changed him so much that he became someone she barely recognized, someone who ultimately became violent with her. Frances describes the series of losses inherent in his Alzheimer’s, including the loss of her sense of herself …read more »
Julia Jarvis remembers how her relationship with her difficult father has evolved both before and after he got dementia. Julia talks about her struggles to make peace with him, and about the challenges now faced by the caregivers in her father’s life.
Psychotherapist Marushka Glissen talks about her mother, a survivor of Auschwitz who now has dementia. Marushka describes how her mother’s experiences complicated her relationships with her own children and husband, and raises the possibility that for some who are haunted by painful memories, dementia may actually provide a bittersweet respite.
Dr. Pauline Boss discusses the experience of ambiguous loss. Dementia often creates a situation in which a person’s body is present, but the mind is absent. For caregivers, this can generate feelings of ambivalence toward the person with dementia, including wishing for this person’s death as a way to resolve the ambiguity. Dr. Boss says that …read more »
Julie Colpitts is the Executive Director of the Maine Coalition to End Domestic Violence. In this episode of Safe Space Radio, she discusses how survivors of abuse are often drawn to social service and first responder jobs, and how these roles are connected to the process of recovery. Julie, herself a survivor, discusses choices she …read more »
This episode of Safe Space Radio features Bob Stains of the Public Conversations Project. He talks about the use of restraints on patients in mental hospitals and discusses facilitating a series of conversations in which both the workers who apply restraints and the people to whom restraints have been applied are able to talk about their experiences …read more »
Harvard Nieman Fellow Jeneen Interlandi talks about her father’s bi-polar disorder. She describes the painful and extraordinary measures her family had to go through to get him into treatment, including restraining orders, getting him arrested, and hiring a lawyer to broker an agreement to get him to take medicine as a condition of leaving jail. …read more »
Julie Marchese is the founder of the Tri-for-a Cure, the all women’s triathlon to raise money for women’s cancer. She describes her experiences taking care of her mother when she had cancer, and how that shaped her ability to take charge of her own treatment when she was diagnosed years later.